Programme

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Day One

7 April 2016 Thursday

I. CHALLENGES IN THE IMPLEMENTATION OF PRECISION MEDICINE

8:00 am – 9:00 am Registration
9:00 am – 9:10 am Welcome

Terry Kaan & Kathy Liddell

9:10 am – 9:40 am Opening Address

Ron Zimmern: “Health Systems and the Future of Personalized Medicine: A Population Health Perspective”

Part I: The Healthcare System 

9:40 am – 10:20 am Keynote

Henry T. Greely: “Precision Medicine: The Ethical, Legal, and Practical Challenges Ahead.”

10:20 am – 10:50 am Morning Break
10:50 am – 11:30 am Presentations

Jeff Skopek: “Precision Rationing: The Law and Ethics of Differentiation.”

Ock-Joo Kim & Yoon-Jung Chang: “Precision Medicine Ethics: Prospects on Clinical Application and Ethical Issues”

11:30 am – 1:00 pm Roundtable

Chair: Hilary Burton

 1:00 pm – 2:00 pm  Lunch [1/F Podium, Cheng Yu Tung Tower]

Part II: Medical Treatment

2:00 pm – 2:40 pm Keynote

I. Glenn Cohen: “Legal and Ethical Issues in Using Big Data for Predictive Analytics in Health Care.”

2:40 pm – 4:30 pm Presentations

Terry Kaan:  “Genetic Information and the Family:  the Future of the Duty of Disclosure and the Limits of Confidentiality

Tracey Evans Chan: “Regulatory Challenges of Innovative Therapeutics and Diagnostics in Medical Practice”

Afternoon Break

Colm McGrath: “Liability for Failure to Disclose and the Challenge of Precision Medicine

Darrell Rowbottom: “On Probabilities in Personalised Medicine.”

4:30 pm – 6:00 pm Roundtable

Chair: Ron Zimmern


DAY TWO

8 April 2016 Friday

II. CHALLENGES IN THE DEVELOPMENT OF PRECISION MEDICINE

Part I: Foundational Research

9:00 am – 9:40 am Keynote

Bartha Maria Knoppers: “Activating the Right of Citizens to Benefit from Scientific Advances

9:40 am – 11:30 am Presentations

Kazuto Kato: “Genomic Medicine in Japan:  Recent Developments in National Policy, and New Ethical and Legal Challenges

Yann  Joly: “Controlled Data Access for Precision Medicine: An Acceptable Trade-off?”

Morning Break

Alison Hall:  “Harm, Discretion or Duty: The Changing Nature of the Return of Individualised Results in Genetics Research.”

Janice Tsang: “Precision Medicine for Cancer Care – Prime Time versus Provocation Threat?”

11:30 am – 1:00 pm Roundtable

Chair: Henry T. Greely

Part II: Translational Medicine

2:00 pm – 2:40 pm Keynote

Donald Chalmers: “Has the Biobank Bubble Burst: A Translational Challenge?”

2:40 pm – 4:30 pm Presentations

Kathy Liddell & John Liddicoat: “The Changing IP Landscape for Precision Medicine”.

Chih-Hsing Ho: “From Bench to Bedside: Secondary Use of Health Data for Precision Medicine

Afternoon Break

Stuart Hogarth: “Lost on Planet Biomarker? Standards, Pathways, Carrots and Sticks for Diagnostic Development in the Post-genomic Era.”

Timo Minssen: “Lost in Translation? Opportunities & Risks of Increased Research & Clinical Trials Data Transparency”

4:30 pm – 6:00 pm Roundtable

Chair: I. Glenn Cohen

6:00 pm – 6:10 pm Closing Remarks and Acknowledgments

Jeffrey M. Skopek