21 Feb, 2014
1:00pm – 2:00pm
Mrs Chen Yang Foo Oi Telemedicine Centre, 2/F, William MW Mong Block, Faculty of Medicine Building, 21 Sassoon Road, HK
Professor Roger Brownsword Professor of Law, King’s College London
This presentation focuses on ‘Big Biobanks’—that is, population-wide biobanks which are established (much like a library) as a resource to be curated for access and use by the research community. It examines three of the many governance challenges faced by the new generation of Big Biobanks. First, whether individual ‘informed consent’ can continue to function where hundreds of thousands of participants are involved and where the particular research purposes and projects to be pursued with the assistance of the biobank are not specified in advance. Secondly, whether biobanks, and researchers who have access to the resource, have any responsibility to return individual clinically significant findings to participants who, because of the longitudinal nature of such research, remain identifiable. Thirdly, how the public interest is to be understood and applied: In which circumstances will access be denied as contrary to the public interest or be granted for reasons of the public interest notwithstanding that the application is inconsistent with the consent given by participants?
Professor Roger Brownsword, who is a graduate of the London School of Economics, has been an academic lawyer for more than 40 years. Currently, he is Professor of Law at King’s College London, where he was the founding director of TELOS (a research centre that focuses on technology, ethics, law, society), an honorary professor at the University of Sheffield, and a visiting professor at Singapore Management University.
He has published more than a dozen books, including Law and the Technologies of the Twenty-First Century(co-authored with Morag Goodwin) (CUP, 2012), and has more than 200 papers in edited collections and law reviews. He has acted as a specialist adviser to the parliamentary committees of the United Kingdom dealing with stems cells and hybrid embryos. From 2004-2010, he was a member of the Nuffield Council on Bioethics; and, currently, he is Chair of the Ethics and Governance Council of UK Biobank.
19 Feb, 2014
3:00pm – 4:15pm
Room A825, 8/F, Cheng Yu Tung Tower, Centennial Campus, The University of Hong Kong
Dr. Barry Kerzin, MD
11 Sep, 2013
12:30pm – 1:30pm
Room A824, 8/F, Cheng Yu Tung Tower, Centennial Campus, The University of Hong Kong
Dr. Brian Sloan,College Lecturer in Law, Robinson College, University of Cambridge, London
Every day, large numbers of altruistic individuals, in the absence of any legal duty, provide substantial and essential services for elderly and disabled people. In doing so, many such informal carers suffer financial and other disadvantages. Drawing on his recent book, Informal Carers and Private Law, Dr Sloan will consider the scope for a “private law” approach to rewarding, supporting or compensating carers, an increasingly vital topic in the context of an ageing population and the perceived need for savings in public expenditure. Adopting a comparative approach covering England and Wales and several other common law jurisdictions, Dr Sloan will explore the recognition of the informal carer and his or her relationship with the care recipient within diverse fields of private law, from unjust enrichment to succession. In considering the potential for expansion of a “private law” approach for carers, he will address the fundamental and controversial question of the price of altruism.
“Brian Sloan read for his BA in Law and LLM degree at Robinson College, Cambridge. He then undertook doctoral studies in family and property law at Gonville and Caius College, Cambridge under the supervision of Professor Kevin Gray and Dr Jens M Scherpe. His PhD was conferred in 2011. Between 2009 and 2012, Brian was Bob Alexander Fellow at King’s College, Cambridge. In October 2012 he returned to Robinson as College Lecturer, Director of Studies and Fellow in Law, where he teaches Equity, Family Law and Land Law. His research interests include informal carers in comparative private law, the regulation of adult relationships, the application of property law in the domestic sphere and the law of adoption.”
6 Sep, 2013 - 7 Sep, 2013
Large Moot Court Room, 2/F, Cheng Yu Tung Tower, Centennial Campus, The University of Hong Kong