Past Events

Conversations at life’s end: reimagining advance care planning in Hong Kong as an intervention

Category:

Public Talks

Date:

29 May, 2014

Time:

12:30 pm to 1:30 pm

Venue:

Room A824, 8/F, Cheng Yu Tung Tower, Centennial Campus, The University of Hong Kong

Speaker(s):

Ms. Marie Danielle Kobler, Research Officer, Centre for Medical Ethics and Law, University of Hong Kong

PowerPoint Slides & Video:

PPT_Marie Kobler

Click here for Video.

Computing Genomic and Health Data in the “Clouds”?: ELSI Challenges

Category:

Seminars

Date:

21 May, 2014

Time:

12:30 pm to 1:30 pm

Venue:

Room A824, 8/F, Cheng Yu Tung Tower, Centennial Campus, The University of Hong Kong

Speaker(s):

Professor Bartha M. Knoppers, Canada Research Chair in Law and Medicine, Director, Centre of Genomics and Policy, McGill University

Data Sharing in Health and Science: Something to Fear or Embrace?

Category:

Seminars

Date:

8 Apr, 2014

Time:

12:30pm – 1:30pm

Venue:

Room A824, 8/F, Cheng Yu Tung Tower, Centennial Campus, HKU

Speaker(s):

Professor Eric Meslin, Director of Center for Bioethics, Associate Dean for Bioethics and Professor of Medicine, Indiana University

Abstract:

In 1969 Canadian communications theorist Marshall McLuhan said: “The more the data banks record about each one of us, the less we exist.” McLuhan’s words may have been prescient coming decades before the sequenced human genome and the surge in use of ‘big data’ analytics raised profound ethical issues for science and society. But it would be a mistake to conclude that collecting and sharing data is always dangerous and dehumanizing. This talk will first review some of the current data on data sharing from why researchers resist sharing data, to what patients say they want shared and then discuss some promising approaches for getting the balance right between protecting personal privacy and promoting public health.

Wrongful actions? The rights and wrongs of wrongful birth and life actions

Category:

Seminars

Date:

28 Mar, 2014

Time:

12:30pm – 1:30pm

Venue:

Room A824, 8/F, Cheng Yu Tung Tower, Centennial Campus, The University of Hong Kong

Speaker(s):

Dr. Vera Lúcia Raposo, Assistant Professor, Faculty of Law, University of Macau

Abstract:

With modern techniques of pre-natal diagnosis it is possible to predict and detect some maladies before birth and even before conception. However, parents are not always correctly informed of the results of these exams. This lack of information may prevent mothers from exercising reproductive self-determination and may impose on the child living conditions excessively burdensome for a dignified existence.

This presentation will deal with actions brought against doctors and/or hospitals by parents in their own names for “wrongful birth” or on behalf of children for “wrongful life,” arising from such incidents resulting from insufficient or incorrect information.

Since prenatal diagnoses are not always scientifically reliable, in what circumstances is it possible to identify illicit behaviour on the part of doctors? What is the expected behaviour from health professionals in such circumstances, according with leges artis, in order to increase the patient’s safety? Do doctors have duties only to parents or also to protect the unborn? Have the child and the parents suffered real damages caused by the medical team? If so, what kinds of damages may be compensated under the law?

These questions are not merely legal, but ethical and even moral: are we attempting merely to reduce human pain, or does prenatal testing implicate eugenics? Is existence always of value or must we also demand a qualitative dimension to the “right to life?” Do such legal actions represent unjustified caprice in search of utopic perfect human beings or a meaningful debate over patient safety?

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